Hello! For several years now, our family has participated in the Puget Sound Buddy Walk, an event created to promote acceptance, inclusion, and respect of individuals with Down syndrome. This year the Buddy Walk will be held on October 11 at Woodland Park Zoo, and I want to ask some of the other people who know and …
I spent Sunday evening through about five p.m. Tuesday at the Neurotrauma ICU at Providence Saint Peter’s Hospital after having a major seizure which I don’t remember. I’m hearing that word has been getting out (which is fine, this isn’t a secret), so I want to share what is happening to me. I actually don’t …
Alec is being treated for cancer in his nose, and the way it was diagnosed is interesting. If you already know this part, you can skip the rest of this paragraph. He has been having nosebleeds for months. Not every day, but often. Usually small ones but sometimes it has taken longer to stop them. …
NOTE: Read from the bottom of the page for chronological order – (i.e. the most recent post is at the top of this page). Friday, October 28, 2022 WOW, twenty years! Today is the 20th anniversary of the day Alec Clayton had open heart surgery. Alec is doing great. Getting older (aren’t we all?!) but he’s happily …
Wow, hi everyone. I haven’t posted on my blog since November 15th. I have been really busy with a lot going on and the blog just slipped away but its time to start again. Alec just got out of the hospital Thursday after a scary bout of Rhabdomyolysis which we had never heard of before. …
I went to see my neurologist Dr. Bell this morning and had the scheduled tests. It helped (a bit) that I had these tests on my feet/legs/knees before. So I knew what was going to happen. I knew enough to seriously consider canceling the appointment. My sister said I was a wus. Maybe I should …
I had three seizures on Tuesday afternoon and was in the emergency room for four hours, and then I was sent home. I know I felt it coming on and called Alec, but then I don’t remember anything until yesterday afternoon. Alec says they told him I have pneumonia too. I’m still recovering and dealing …